08.06.2013 | World Vitiligo Day Facemotions

World Vitiligo Day (June 25) Stephanie Corne, a French American artist living in New York City, will be creating portraits of people with vitiligo with a photographer at Henry Ford Hospital in Detroit.
Originally from Paris, Stephanie Corne is an artist, muralist and set designer, who has been working with the best in the industry for the past 20 years. This year, she is lending her unique talents to vitiligo awareness by undertaking an exciting new project called “Facemotions” that aims to bring out the unique beauty of each subject.
“My work as an artist is to challenge the concept of beauty. With this project, I am conveying inner feelings on the face. As a painter I see a person with vitiligo as someone with an incredible landscape on which emotion can be uniquely expressed. My goal is to show, both to the person whose portrait is taken, and to the viewer, that faces with feelings openly and starkly expressed can show us what makes us all human and makes us all the same. Art is a tool for healing as well. Someone who develops a skin condition has to deal with social stigma and more, and this is my way, as an artist, of contributing to social and self-acceptance.”
Stephanie invites anyone who is comfortable with having a small portion of their face or neck painted, to come along and have his or her portrait done, express a feeling, a mood, and to have a good time. The pictures will be part of an exhibition along with portraits of people with other skin conditions such as albinism, scars, burns and anyone who just wants to express a feeling in front of the camera. There is no age limit.


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Why Is It Important

There are a lot of people who don't want you to stand up for your rights and demand a cure. They say vitiligo is not life threatening and not contagious, and you must embrace a life of a pariah, hiding yourself from sunlight and from the society.

Vitiligo is an under-researched disease resulting in milky white skin patches on the skin. The breadth and complexity of the disease require international collaboration in therapy development. The severity of the disease calls for national healthcare support.

So, speak up for your condition and your rights. Sign the letter to tell the UN Secretary-General that you want recognition and support. It would be appreciated if you could give every member of your family or group an opportunity for signing.

Signatures count

We have collected 503191 signatures of the target 500000 (100.64%). Now let’s get 1 million signatures!


Firmly committed to curing Vitiligo, the VR Foundation is a non-profit organization funding and fast-tracking medical research globally. We challenge the disease of vitiligo with educational and medicinal enlightenment. We care; we educate; we advance knowledge. We are the VR Foundation.

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